Wednesday, January 28, 2015

Endometriosis: Post Op and Release

I'm not really sure how it is possible but I felt like it was longer than 2 weeks after my surgery that I was finally able to go in for my post op appointment. I guess technically it was a little more than 2 weeks but it was the quickest he wanted to see me after my surgery. I was going crazy waiting to hear the results of surgery from my doctor directly. Anyway I finally got released to do things like a normal person again. Yay!

First things first he said that the "bump" in my belly button would go away as the area continues to heal! Seriously one of the best things he told me the entire appointment. I know it sounds dumb but it looks so funny. He checked both of my inscision sites and they are both looking good and healing just like they should be. He said the bruising will go away soon and he wasn't the least bit surprised that it was still there. He actually said, "we removed a lot of tissue so that bruise looks pretty good" I assured him that it is a lot smaller now than it was last week! We went over the general questions, how are you feeling, are you having any pain, etc. I feel great actually so good that when people ask me how I'm doing or feeling I get a really confused look on my face because I don't feel like I had a pretty serious surgery at all.

Now down to the nitty gritty. 

The post op diagnosis 
1. pelvic endometriosis - stage 3
2. severe adenomyosis uteri
3. intracavitary uterine polyp

I knew that the official diagnosis and results were worse than I was hoping they would be but I had no idea how bad everything actually looked. My uterus was so enlarged that it was smashing my bladder. The picture of the polyp looked like tiny strange colored fingers growing inside my body. Eww (I really want to get colored copies of the pictures he took but was to overloaded with the next task things to ask for them.) My doctor was able to remove the endometriosis lesions that were on my uterus and lower abdominal area as well as any other lesion that were possible to remove with a laser. He was also able to easily remove the entire polyp from inside my uterus with no problems. He also removed some endometrial lesions from my fallopian tubes. The dye test they did showed that my tubes were "dumping" properly ie when I was ovulating my eggs were making to into my uterus. He also found prevalent adenomyosis which is when endometrial tissue grows into the muscular wall of the uterus. Adenomyosis is not removable with the laser like the endometriosis lesions are. Due to the severity of my adenomyosis and pretty much the fact that it is present at all, I will start Lupron injections. I was hoping to start them immediately but I have to wait until next week. He wants me to be around day 25-27 of my cycle before starting the injection. Waiting one more week is no big deal at all plus it gives me some more time to do more research about the medication. 

When I was questioning him about the lupron; how often do I have to get it, what are the side effects, what is it going to do exactly, am I going to ovulate, how soon will I start to ovulate again, will this get rid of the remaining endometriosis and the adenomyosis? He answered all my questions with confidence and a reassuring tone. He also made it very clear to me that this next step is really our only option for us to have another child on our own. Basically to me what he was saying is "get the shots and you will have another baby, don't get them and you won't." Not that it is every that clean simple but that's the basics. I am going to have treatment and take whatever odd things  (within reason) it causes for me as signs of my body getting better. I asked him how it works and my best retell of what he told me is this. 'My uterus is swollen and mushy. The medication will help heal my uterus by both "firming" it back up and shrinking to it's normal size. Once that has occurred or while that is happening my body will kick in and start fighting the ednometriosis (edno)/adenomyosis (adeno) and killing it off. He will be able to tell if the treatment is working through a physical exam which will take place again after 3 treatments and again after the full 6 if he feels all are necessary. Which they will likely be.'  Like I said, my retell and I'm no doctor or medical professional but that's the best explanation I can give you. I will stop ovulating while on the medication because it will shut down my system. It is necessary for it to be shut down to rid my body of the endo/adeno since it gets worse with every cycle. I should start to ovulate anywhere from 4-8 weeks after my last treatment. He said that most women are able to conceive within the 2 year time span of this treatment and their endometriosis starting to come back. He also says that besides the severity of endo/adeno my body is healthy and shows no reason to not be able to have a baby. I'm hopeful that we will be sharing the good news of a successful conception by the end of summer or early Fall. 

Until then I'm going to relax and enjoy myself. I'm looking forward to 3-6 months of living without the stress of trying to conceive. If you have ever tried to have a baby and I mean really tried then you know what I mean!

My question for you is, have you ever had lupron injections? If you have please share your experience of it with me. I have been reading some of the side effects and some don't seem bad but some seem so annoying to deal with. I know that every medication acts differently with every person but I want to know how it worked or didn't work for you. I want to know what vitamins you took to help alleviate some of the symptoms. Email me or message me on facebook. I want to be prepared for any craziness that is coming my way but I'm also ready to finish this battle!

Thanks for reading and listening to my story but most importantly for sharing yours with me!

No comments:

Post a Comment